9 January . Our Speakers Kim Naude and Alison Carver from the National Centre for Health Living provided us with an interesting discussion n he research they were undertaking and inviting any Rotary members to join a committee they were setting up. Their 3 main targets are : Tackling the stigma of dementia.Dementia is one of the major causes of disability in older people, yet often people with dementia can’t access rehabilitation. Assoc Prof Michele Callisaya, a National Centre for Healthy Ageing and Monash University researcher, is leading an MRFF-funded project addressing this important issue. Solving challenges in designing the NCHA Healthy Ageing Data Platform The development, design and capability of the NCHA’s Healthy Ageing Data Platform was promoted at international and national symposia this year, including being invited to lead a key symposium at the Australian Association of Gerontology (AAG) Conference in November, 2023. The symposium, ‘The National Centre for Healthy Ageing, Healthy Ageing Data Platform: developing a data ecosystem for studying the complexities of ageing’, highlighted some gaps in current Electronic Health Record (EHR) data for research, and provided details about key activities undertaken to address these gaps including: - data validation using aged care residency as a case study
- improving diagnosis coding using Artificial Intelligence
- data linkage for comprehensive data capture
- engaging older consumers in the use and governance of their data
- the acceptability of patient reported outcome data collection from an older person perspective.
New program which empowers those with dementia to live their fullest lives People living with dementia are being encouraged to do more daily tasks rather than have things done for them as part of a collaborative project that aims to enable them to live fuller lives
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